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dc.contributor.authorLilleheie, Ingvild
dc.contributor.authorDebesay, Jonas
dc.contributor.authorBye, Asta
dc.contributor.authorBergland, Astrid
dc.date.accessioned2020-03-23T15:03:40Z
dc.date.accessioned2020-03-25T01:47:59Z
dc.date.available2020-03-23T15:03:40Z
dc.date.available2020-03-25T01:47:59Z
dc.date.issued2020-02-24
dc.identifier.citationLilleheie, Debesay, Bye, Bergland. Informal caregivers’ views on the quality of healthcare services provided to older patients aged 80 or more in the hospital and 30 days after discharge. BMC Geriatrics. 2020en
dc.identifier.issn1471-2318
dc.identifier.urihttps://hdl.handle.net/10642/8313
dc.description.abstractBackground: In the European Union (EU), informal caregivers provide 60% of all care. Informal caregiving ranges from assistance with daily activities and provision of direct care to helping care recipients to navigate within complex healthcare and social services systems. While recent caregiver surveys document the impact of informal caregivers, systematic reviews show that they have unmet needs. Because of the political desire to reduce the length of hospital stays, older patients are discharged from the hospital ‘quicker and sicker’ than before. The transition between different levels of the healthcare system and the period after hospital discharge is critical for elderly patients. Caregivers’ perspectives on the quality of older patients’ care journeys between levels of the healthcare system may provide valuable information for healthcare providers and policymakers. This study aims to explore older patient’s informal caregivers’ views on healthcare quality in the hospital and in the first 30 days after hospitalisation. Method: We conducted semi-structured individual interviews with 12 participants to explore and describe informal caregivers’ subjective experiences of providing care to older relatives. The interviews were then transcribed and analysed thematically. Results: The analysis yielded the overarching theme ‘Informal caregivers – a health service alliance – quality contributor’, which was divided into four main themes: ‘Fast in, fast out’, ‘Scant information’, ‘Disclaimer of responsibility’ and ‘A struggle to secure professional care’. The healthcare system seemed to pay little attention to ensuring mutual understandings between those involved in discharge, treatment and coordination. The participants experienced that the healthcare providers’ main focus was on the patients’ diseases, although the health services are supposed to view patients holistically. Conclusion: Based on the information given by informal caregivers, health services must take into account each person’s needs and preferences. To deliver quality healthcare, better coordination between inter-professional care teams and the persons they serve is necessary. Health professionals must strengthen the involvement of caregivers in transitions between care and healthcare. Future work should evaluate targeted strategies for formal caregivers to cooperate, support and empower family members as informal caregivers.en
dc.description.sponsorshipThe project was funded by The Research Council of Norway and is part of a larger project of Crosscare-old (project.nr. 256644/H10).en
dc.language.isoenen
dc.publisherBMC (part of Springer Nature)en
dc.relation.ispartofseriesBMC Geriatrics;20, Article number: 97 (2020)
dc.rightsThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made.en
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectHealthcareen
dc.subjectInformal careen
dc.subjectCaregiversen
dc.subjectElderly peopleen
dc.subjectCare qualitiesen
dc.subjectPatient centered careen
dc.titleInformal caregivers’ views on the quality of healthcare services provided to older patients aged 80 or more in the hospital and 30 days after dischargeen
dc.typeJournal articleen
dc.typePeer revieweden
dc.date.updated2020-03-23T15:03:40Z
dc.description.versionpublishedVersionen
dc.identifier.doihttps://dx.doi.org/10.1186/s12877-020-1488-1
dc.identifier.cristinID1802106
dc.source.issn1471-2318
dc.relation.journalBMC Geriatrics


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This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made.
Except where otherwise noted, this item's license is described as This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made.